HARTFORD - On Wednesday Governor Dannel Malloy signed a bill into law that creates SMARD Awareness Day.
Spinal Muscular Atrophy with Respiratory Distress is an incredibly rare disease.
Nine-year-old Hunter Pageau from Connecticut was the inspiration behind the bill.
The hope is to bring awareness to the disorder and get people involved in finding a cure.
The family has dealt with many challenges, the latest one being the recent breakdown of Hunter’s transportation van.
A family friend has set up a GoFundMe page in order to help Hunter and his family repair the van.
