BRANFORD - When we first met Jean Kelley, she was pushing for a new law to require newborn screening for adrenoleukodystrophy (ALD), the devastating genetic disease that took away her young son's ability to talk, move or feed himself.
"If one is able to intervene at the point where the first neurological symptoms appear, either with bone marrow transplant or with … stem cell therapy, it's very likely that you will arrest further deterioration," says Dr. Myron Genel of the Yale Child Health Research Center.
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